And we are back safe at home

We do not travel without music.
I swear that this kid is the world's best travelling child!
Not a peep out of him. Everytime we arrive in the big city one or more of our travelling companions will comment at how well this boy travels. And they ask Is he always this good? I say oh yes. *wink* Of course, he's an angel right?

The hospital has some type of new torture device. Poor guy.
It's actually a special chair for him to get a sitting exray.

Here is the exray. I thought this was fascinating. The exray on the left was taken at 3.5 years old before he started having all them back surgeries. You can see, or not, how twisted his little spine was. It was litterally collapsing on him. Fast forward 5 years and that is the exray on the right. He will need revision in the next couple years to straighten out the pelvis.
Other than this his spine is stable and he's doing well orthopedically speaking.
Urologically speaking he's doing okay. He still has bladder spasms and his medication was increased to 2 times a day.
I have given the go ahead for surgery next year regarding his bowels. I didn't want to have any type of surgery, I was holding out hope that things would get better on their own. After 5 years it's time to look at other options to make both of our lives easier. One of the options offered to us is an A C E procedure. I don't look forward to the whole process of surgery but in the long run if this helps him and me have a better quality of life then we'll go for it. I was in the hotel and kept thinking about this and was wondering if I am being fair to the little guy. I asked myself if I was doing this for selfish reasons. I wondered if it really would change our lives for the better.
We will see won't we?

I have to say that ATM's were one of the world's greatest inventions, according to Aaron. This boy loves him some ATM. He loves to watch the animations on the screens. I remember a time when I could not go by this thing without him putting a death grip on his wheels and I could not move forward at all for the life of me. Now he can go by them without the wheel-death-grip. Yayyy, for my own sanity.
While out shopping with Aaron I couldn't help but have some sadness. A bit of grief for things that my normal is just not the norm. While I'm browsing toys for Aaron as gifts I'm looking at little boy toys but he's off in the Fisherprice and Playskool area. What was so sad for me there was a little boy around Aaron's age picking out action figures. That hurt. Here's my kid playing with some Fisherprice baby toy.
I do not buy them because he would stim on them and I want to help move his development forward.

I had a plan B lined up for his birthday but that didn't go through because I was totally uninspired and unmotivated to do anything. So I have not celebrated the boy's birthday at all. I found a few things for him while out shopping in Montreal. I came up with a plan C. I've invited my brother and his girlfriend and my nephew for a little celebration Saturday.

By the way the DS never came and I called the sender to rip someone an earfull!